Posted in aches, Arthritis, Chronic lower back pain, chronic pain, Coping with Chronic Pain, Fatigue, Fibromyalgia, Health Care, Knee pain, Muscle and joint stiffness, Rheumatoid Arthritis, Surgeries, U.S. Pain Foundation

DEA’s Latest Attempt to Punish Chronic Pain Patients

Now the DEA’s newest proposal targets drug manufacturers by giving them quotas as to the number of controlled substances they will be allowed to produce. Here we go again … another attempt to bully and force decreases in the manufacturing of pain medications – which hurt millions of Americans suffering with some form of chronic pain. But there is little empathy toward chronic pain patients suffering from back issues, hidden illnesses, and even surgeries.

And the number of patients who have been refused pain prescriptions for diagnoses they’ve lived with for decades continues to increase as will the suicides by these patients who can find no other form of relief. Following this is the comment I submitted to the DEA and I urge you to send your story to them ASAP. In the article, “DEA Wants to Target Drug Manufacturers in Opioid Supply, by Ed Coghlan and found in the National Pain Report dated April 21, 2018, click on the article title which will take you to the proposal docket  with instructions on submitting your comments. This is opened to the public until May 4th so please send your comments in today.  Thank you.

To Whom It May Concern:

I am pleading with you to cease, overthrow, and forget about the proposal to decrease the manufacturing of controlled substances, namely, opioids.

Scoliosis, Spinal Stenosis, herniated discs, and six fusion surgeries on my back due to Scoliosis have left my spine with 2 inches of bone-free fusions. It was decided not to fuse that area because of assumed increased complications. My back pain increased resulting in quitting my job and stop instructing, choreographing, and dancing line dances, restricted my love of gardening, house cleaning, and shopping due to the impact of pressure forced on those 2 inches of my spine.

Since July 2012 I have been on disability, spent the year of 2013 contemplating suicide and wallowing in a sea of depression as new health issues arose. Less than six months ago I was diagnosed with Restrictive Lung Disease and am now on oxygen 24/7 along with the myriad of medications to address my severe chronic back pain, restless leg syndrome, fibromyalgia, depression, and lack of sleep.

Taking Percocet at the dosage of 7.5/325 mg four times a day allows me to walk on the treadmill at 2.0 mph for 30 minutes (3-4 times weekly), dress myself, make the bed, and wash dishes. I go shopping with my husband at least once a week to get out of the house and unfortunately, we come right home after the first stop because the back pain will not allow me to spend an afternoon of shopping. I walk with a cane and sometimes ride in a wheelchair. And I’ve tried to dance a little bit for exercise but the oxygen tubing gets in my way.

If I didn’t take the Percocet four times a day my day would look like this: Wake up, go to the bathroom, sit back on the recliner with heating pad and moan in pain – and this is where I would spend my day. Activity increases my pain, therefore, physical activity is gone. Going out to shop is out of the question. Household chores including picking up items around the house, making the bed, or washing dishes is out of the question because the back pain travels down both legs and stirs up the RLS … forcing me to get back on the recliner. I’d get fat. I’d be depressed. And I’d be thinking of other options that would take away the misery of my painful life.

It was revealed that the CDC inflated the numbers of opioid suicides in its report per this article: (https://www.painnewsnetwork.org/stories/2018/3/21/cdc-admits-rx-opioid-deaths-significantly-inflated) And there have already been a few suicides by pain patients who were refused pain medication, leaving the patients with suicide as their only option to relieve their pain.

Controlling substance quotas isn’t going to remove suicides amount the citizens of this country – it is going to escalate suicides. For some reason people who do not live with chronic pain, believe it can be remedied with physical therapy, acupuncture, massage therapy – all great options, but they do not last. And they are expensive.

I cannot live a semi-normal life without Percocet. I’ve tried cutting down and find myself eventually taking the required number because the pain escalates quickly. How am I suppose to live? How am I suppose to enjoy visiting my son and his family including two grandchildren? How do I face a day without pain relief?

PLEASE, I BEG you to remove this proposed rule and reconsider your actions. This rule will escalate suicides, remove quality of life, and force pain patients to spend their days and nights in bed. Is this the society you are striving for?

Respectfully,

Carolyn Robinson

Author:

After training for copywriting, I am currently blogging for a living! So far working with a company that outsources for other companies and I've become the "preferred writer" for two companies!!! I'm very excited about having my own blog site and look forward to adding interesting info for you!

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